11-12-13. I think
that’s pretty cool. Next year will be
the last of the numerically-ordered dates (12-13-14) for a century. What will you do on that date? What will I do? Hmm I’ve got some time to think about it.
So I haven’t blogged in a week or so. My apologies.
It’s been an uphill climb this week.
Chemo pretty much knocked me out on Wednesday. All I wanted was to sleep after I got
home. I told my boys good night at
around 8:30 p.m. Is that too early? Hope not.
It was what I needed. I feel bad
though leaving them to fend for themselves on days like that. Thursday was better. Friday started out frustrating because the
home health agency had neglected to put me on their schedule. If I hadn’t called them to see where my nurse
was, they would not have come out at all to disconnect me. That really got under my skin. Of course they apologized and promised it
would never happen again. But I cringed
at the thought that I would have been attached to the empty chemo bag for
longer than I had mentally prepared for and still five days later, it makes me
sick to my stomach. I have to shout it
out to the world, you cannot ‘fuck’ with a chemo patient like that
(intentionally or not) because we can only handle so much emotionally and we
prepare for that, we don’t prepare for your oversights or mistakes. There, I've said it. Fortunately, Friday ended much better with a
wonderful visit with my Zumba BFF at the gardens and then a scrumptious dinner
afterwards.
My side effects have been varied. Still shedding or thinning my hair at
Guinness Book of World Record speeds.
Doctor assured me I would not lose it all. I sarcastically replied that
I guess if I have two strands left on my head at the end, he would be, technically,
correct. I don’t know which would be
easier, just to lose it all and go with the shaved head look or try to maintain
the status quo. The pain in the jaw
hasn’t been as bad as before nor the muscle twitching. That is a relief, for sure. I wonder if my life-changing smoothie is
responsible for the minimization of those
side effects… don’t know for sure but I will keep drinking it. Every. Single. Day.
However, I did not get my acupuncture this go around because
that Doctor was out of town. And my
hands and feet hurt terribly from the neuropathy. Seriously, seriously cold sensitive
here!! I cannot let myself get cold at
all because it’s brutal. My face and my
nose froze up (i'm talking paralysis frozen) when I was walking around the garden. I wrapped my scarf around
my nose/mouth and exhaled into it to warm it up. Also, after the sun went down at my son’s
soccer game, I bee lined it to my car because the tingling pain started up and
down my legs and even my butt cheeks!!!! How am I going to make it through
winter in St. Louis without a complete withdrawal from society and subsequent hibernation?
Possible solutions: 1) I’ve been looking online at blanket
sleepers with the feet in them like when I was younger. That’s attractive, right? Maybe I’ll get one in turquoise to bring out the
blue in my eyes. Would it be bad form to
wear it all day?
2) Soliciting my friends who have hot tubs to let me spend all
my free time in it or at the very least finding
friends who HAVE hot tubs!!!! 3) Using a portable heater to supplement the
radiator heat; 4) moving to the equator and finishing chemo there. Number three is the only one I’ve been able
to do.
I’ve got six more treatments. I’m almost halfway there. I will have a PET scan sometime after the
sixth treatment and before the seventh to make sure everything is going like
the doctor has planned.
I’ll write more later.
But for now, I’m tired… and cold.
What’s up with the thermostat in my office????
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