Showing posts with label love. Show all posts
Showing posts with label love. Show all posts

Friday, August 19, 2016

It's in the Production phase!

Hello! It's been a while, that's for sure. I've been working diligently editing my book, Midnight Playground Where the Soul Plays. It has taken me almost as long to edit it as it did to write it. But I have to say, it's really good.  The feedback from my beta-readers has been amazing and encouraging.

I sent the final draft and the cover artwork to the publisher two days ago.  Now I'm working on creating the social media presence for my book and developing the brand, Simone M Richards - author.  I'm learning TONS!  Eventually I will be migrating the Minivan Philosopher over to Simone's blog and website.  You will be notified when that happens.

It seems very surreal. The book could be available as soon as Christmas and as late at March.  Either way, I know that when it's ready it will be the right time for me. I've had wonderful support throughout the whole process from my family, my friends and my editor.  His feedback is immeasurable!  He saved the world from my first draft, ha ha ha!

I'm excited to get this underway and then head back to my keyboard and my office/study at home.  I've treated myself to an upstairs study. I kicked the Rockstar to the basement and moved the Sage to another room so I could have my own library/office/study.  I feel like a proper grownup now.  The Rockstar protested initially but I think he kind of likes his mini apartment in the basement.  Of course, I have to remind myself when I go down there to get to the laundry room, that the putrid smell is of his soccer cleats and not a dead animal.  He'll be off to college in twelve months. I'll miss him but not that smell.

Anyway, I apologize that I've been a bit neglectful to you here at Minivan Philosopher and wanted to update you. It's exciting times for me and pretty much everyone connected to me.

I saw this on a wooden sign at a store in Chicago recently.
She believe she could, so she did

Yep, you're right. I bought it.

Oh and it's been three years since my surgery and I'm still cancer-free!!!!


The Ferris Wheel in Seattle!  Yeah, I've been vacationing a bit as well as writing and editing. I'll post pics from our absolutely beautiful hikes in Oregon and Seattle, Washington soon.
Cheers!

Tuesday, January 12, 2016

My new reality is around the corner

Yeah! I did it. Finished the book. Been revising and editing for what seems like ages now. I've had three rounds of beta-readers and have absorbed all they suggested. Only one person didn't like it; but she still had valid comments. Now I'm finalizing the artwork, prepping the website, filling out paperwork, drawing up intellectual property contracts and generally feeling giddy about the future. It's really happening. My intention to live my life as a published author is only a few months away. It's going to be so much fun.

In between book stuff, I've been looking for a car for my Rockstar, working at my suddenly politically sensitive and busy "real job", managing to stay sane during club soccer season, doing lots of yoga (one year in so far and my body has really changed and it's no longer in constant pain -big smiles here!!), dieting and down 40 pounds since August...working on last 20. Love my life.

In the midst of all my wonderful happiness though are reminders that life is short and so unfair. I've lost two friends in the last six weeks to different medical issues: heart attack and colon cancer (yikes that's close to home!). Both men left behind kids and families that dearly loved them and a community that misses them tremendously. Both were musicians and when I heard of David Bowie's death today, I visualized them all making heavenly music together and it made me happy.

Love fully, love richly, love now
~the Philosopher

Friday, July 31, 2015

My Journey, His Journey, Your Journey, Our Journey

And I'm not talking about the band Journey although the title of this blog post could easily be on a flyer for any karaoke bar here in St. Louis...

No I'm talking about that path we all march on from birth to death... our journey.

Sometimes it crosses others, sometimes it merges, sometimes it veers right when others go left.  The only consistent part is that you are still on it, on your path.  Only you can walk it, dance it, run it, drive it.  Sometimes we want to keep our journeys merged with other people's because it is more fun, more interesting, we love them or we are afraid to be alone on our own journey.  But what do you do, how do you cope when the paths diverge and you weren't ready yet?  Or you thought you weren't ready?

TRUST.  Yep that little word.  You must surrender to trust in your path. Sure, you can be sad that you won't be walking, dancing or running together anymore.  Please, shed some tears too.  Those are all good and necessary to healing and to seeing your way clearly on your own path again.  Try your best to fight the urge to analyze under a microscope every step you made while on the merged path.  Try your best to not be angry at your fellow sojourner who took the fork in the road which was only evident on his/her map.  If you can allow yourself to trust that you are walking down the path exactly as it is supposed to be, you can look forward to all that you are about to encounter, and you can be grateful for all that you have already walked.  Sometimes your paths will cross again or merge again and then that section of your journey(s) is even better than the first time.  But sometimes they do not ever come into contact again, and you have to trust that that was just how it was meant to be.

I walk mine.  You walk yours.  Sometimes we walk it together.

Until our paths cross again, god speed...

-the Philosopher

Thursday, June 11, 2015

I love you.



I love you.
Today, I love you.
Perhaps I will still love you tomorrow.
But today, know that I love you.
And with each wake, it is still today.
And today, I love you.

My love isn’t meant to burden you.  My loving you doesn’t mean you now have to solve all my problems and ensure my happiness for the rest of eternity. My love isn’t conditional. My love isn’t a call to superhero action for you. My love is quiet.  My love is warm.  My love is fondness.  My love is tenderness. It is healing. My loving you is simply the action & reaction of my heart and soul towards you.  My love isn’t meant to shackle you.  My love isn’t designed to possess nor to suffocate you.  It simply is.  As you and I, simply, are.

Friday, May 8, 2015

True Love - A Practice

I was introduced to the book True Love: A Practice for Awakening the Heart by Thich Nhat Hanh on the website www.brainpickings.org

(In fact, I have been introduced to quite a lot via that website.  If you are interested in expanding your intellectual capacity I highly recommend giving her a visit.)

Anyway, my interest was piqued reading her essay about this book and I rushed to the public library website and promptly reserved me a copy.  I have renewed it twice already.  It's a short book, 104 pages.  Written very simply but worth reading and re-reading.  I think I will end up just buying my own copy.  I can only renew it one more time before I have to return it.  I wanted to share with you my readers an extremely brief synopsis of the four aspects of love as described in the book.  For a much more in depth and beautifully written essay, go to brainpickings and read hers.

Here is my summary...

According to Buddhism, there are four aspects of true love:

1) Maitri meaning loving-kindness or benevolence.  It's the desire AND the ability to bring joy and happiness to the person you love.  "Because even if your intention is to love this person, your love might make him or her suffer."

2) Karuna meaning compassion.  This is the desire AND the ability to ease the pain of another person. 

To bring joy and compassion you must practice "deep-looking" or searching for understanding of your love.  Because when you know and understand his or her aspirations and his or her sufferings, you can bring joy and ease pain.  How often do we actually practice "deep-looking" with the people we love (including our family and friends)?

3) Mudita meaning joy.  "If there is no joy in love, it is not true love.  If you are suffering all the time, if you cry all the time, and if you make the person you love cry, this is not really love -- it is even the opposite.  If there is no joy in your love, you can be sure it is not true love."

and

4) Upeksha meaning equanimity or freedom.  "In true love, you attain freedom.  When you love, you bring freedom to the person you love.  If the opposite is true, it is not true love.  You must love in such a way that the person you love feels free, not only outside but also inside.  'Dear one, do you have enough space in your heart and all around you?'  This is an intelligent question for testing out whether your love is something real."

Hanh goes on to say that to love in the context of buddhism is to be there. To bring your true presence to your loved one, not only your body but your mind too.  He suggests this mantra to say to help you stay truly present, "Dear one, I am really here for you." 

I had several ah-ha moments while reading True Love.  And each time I re-read a passage or paragraph or dwell on a definition, I gain more insight into what was preventing earlier relationships from being true love.  I am definitely more at peace in my current relationship with 007 than earlier ones (especially Mike and my fox).  I am practicing deep-looking and being present.  I am learning what it feels like to love according to Buddha.  It is different, scary at times but there is no suffering like before.  I like that.  I will continue practicing true love and awakening my heart to it.

Thanks for stopping by and I hope you have true love already.  If not, may you find each other and enjoy it for the rest of your days.

"Dear one, I am here for you."
~The Philosopher

Sunday, March 29, 2015

Four words

"Get your own water."

"I'm on my way."

The first sentence has scarred me with me many years of pain and confusion and feelings of worthlessness. The second sentence brought tears to my eyes because of all those years of pain and confusion and feeling worthless.

When my ex-husband and I were first dating over 22 years ago, I would ask him to fill my glass of water if he were getting up to go to the kitchen. It was one of those "hey while you're up, would you mind getting me ..." sorts of requests. I didn't think anything of it. I didn't think it was a big deal. A few months in to dating each other, he said to me that he hated when I would ask him for water and that he felt I was taking advantage of him and that I was just being lazy. I never asked him for another glass of water. It hurt when he said that. Had I known then what I know now, I would never have continued dating him nor married him but I didn't. I was young; I was a people pleaser. Those four words "get your own water" became ingrained into my psyche way down deep. The man I loved didn't think I was special enough to bring me water when I asked, so obviously I wasn't special enough to matter to anyone especially other men.

I have been divorced over ten years.  Who would have thought that I would still be feeling the after effects of those four words?

But last night as I sat in 007's car tears welling up in my eyes because I was overwhelmed by his kindness towards me. A simple act that he didn't think twice about almost knocked my core being completely flat.  He came to pick me up, to drive me home after an all-day pub crawl I had been on so I wouldn't have to drive home.  His text "I'm on my way" brought tears to my eyes.

Not only did he drive twenty minutes to get me, he parked & came inside the bar to find me. I was expecting that he would drive up, text me he was outside & I would leave. And I would have been okay with that because that's what I was used to, how a not special-enough person is treated, always feeling that I had been too much of a burden already, I couldn't possibly ask for anything more. I didn't ask him to come get me, my girlfriend made the telephone call. It didn't take much convincing on her part. She asked, explained the situation and he said he was on his way. Why was I so afraid to ask him? Because I was afraid he'd tell me no, to get my own water, reinforcing my belief that I wasn't worthy.

But he didn't. He came. He took care of me because I am special & because he is kind.

I'm moving through new emotional waters here. It's going to be hard to undo 20+ years of negative self-talk, to realize that people (including men) will do nice things for me because they want to & because they like me, not because of what they can get from me in return. I am so grateful, so eternally grateful, that the universe is giving me this gift of growth towards acceptance & healing and that 007 is her chosen tool.

I'm on my way.

Friday, March 13, 2015

Timing is everything...

"Dear Minivan Philosopher,

The right people always find each other at the right time.

Relax,
The Universe"


This message appeared in my email inbox at exactly the right time. I had been dealing with some festering anxiety (R-PTSD symptom flareups) about the upcoming lack of time with 007 due to school schedules and family vacations.  I have been so happily spoiled these last six weeks; how was I going to make 10 days without being with him? I tried to stay awake as long as possible last night so I could create a memory map of him to recall when I really started to miss him. The little anxiety voice was getting louder and at 5:15 a.m. it was downright obnoxious.  So when the alarm went off and I checked my email, there was that message from the Universe.  I said "thank you" and sighed the anxiety out of me. I became calm and peaceful, again.

The old wise men and women all say that timing is everything.  And I truly believe it! I don't think I would have been ready for 007 a few years ago or even last year during my cancer treatment (although he would have been a great partner to have by my side).  Nor do I think he would have been ready for me before now.  Even though we have been attracted to each other since we met and friends before now, we each had to continue on our separate journeys, to make mistakes, to learn and to grow, to forgive and to let go.

We are still navigating our own journeys but they are made a little nicer and a little sweeter because part of our respective journeys now includes each other.

And although ten days will feel like an eternity compared to how much we have been seeing each other, it's not forever.  I'm definitely looking forward to the "reunion".

007 is the right person for me at this time.  I am thankful. And dear Universe, I am relaxing.

Friday, March 6, 2015

Relationship PTSD


Hi. I’m the Minivan Philosopher and I have Relationship PTSD. 
Yep that’s what I wrote.  Relationship PTSD (R-PTSD).  The first step towards healing is admitting it.

 Most people suffer from R-PTSD but they call it ‘baggage’ or ‘issues’ or ‘acting crazy’.  When it is in actuality all of those things wrapped up together that form R-PTSD.  (Appropriately the acronym reads Re-PeaTing Stupid Dynamics.  Lord knows I repeated enough stupid dynamics in my relationships.)

 Why did I coin this term?  What is happening in my life that brought it to the forefront?  Am I in a difficult relationship? No. There is no relationship chaos.  It’s going just fine. And I’ve realized because of the absence of chaos, my baggage, my issues, my R-PTSD tendencies are flaring up and have nowhere to go except to sit right in front of my face making me name them and process through them. I am very uncomfortable.  It’s as if the tendencies or habits want me to give life to them, bring them out of the dark, damp place they’ve been resting since the end of my last relationship so they can assume their rightful and normal place in this new relationship.  This is the first time in my life though that I can see those tendencies with clarity and more insight than ever before.  I don’t want them to intrude upon my happiness or peacefulness.  But I can’t ignore them.  That is more dangerous.   If ignored, they will manifest in different ways and probably be very ugly too.  Nope, I must look each of them in the face as they stir to life and acknowledge where they came from, the hurt that created them and free them of feeling that they must protect me.  I need to forgive.  Forgive those that came before and forgive myself.


It started this way…



Monday, December 8, 2014

No longer "A Dozen" but "My Dozen".

Hardboiled
Scrambled
Organic
Cracked
Raw
Over Easy
Sunny Side Up
Poached

2003. January. Cold. Big Belly.  Pregnant with apprehension.  Pregnant with resentment.  Pregnant with anxiousness.  Just go.  Quit making your children cry. Empty heart.

2003.  June.  Hot.  Big Belly. Baby (the Sage) sleeping in my arms.  LadybugRockstar by my side holding my hands. Just go.  Quit making your children cry. Empty heart.

2003. August.  Hot. Just go. Quit making me cry. Empty heart.

Present day.  Cold. Windy.  Not so big belly anymore.  Ladybug living in Portland.  Rockstar &
Sage by my side holding my hands.  How is my heart?

Hardboiled
Scrambled
Organic
Cracked
Raw
Over Easy
Sunny Side Up
Poached

A dozen years have almost gone by.  A dozen to match the number of years I was married.

For a long time, I dwelled on the fact that I have been alone without a significant other during these last 12 years.  Yes, I've had 'relationships'.  Some have been more heartbreaking than others.  Some have been fleeting.  Some were good.  Some started good.  Some ended good.  Some did not.  I kept thinking there must be something wrong with me.  I kept asking the universe why was I still alone?  If I'm going to be alone and single the rest of my life, please make it very clear so I can quit hoping. This was the sort of message I had been internalizing or verbalizing when stuck in traffic.  But I'm trying to change.

A good friend of mine that I met through shaking meditation once said to me to change my perspective & to change the statements from focusing on what you want less of to what you want more of.  For instance, "I want to cuss less"  re-worded "I want to have more loving words come from my mouth."  "I want to quit being fat," re-worded "I want to be more healthy."  Pretty simple.

Today while stuck in traffic, and after a particularly melancholy evening dwelling on my 12 years of aloneness, I thought that perhaps my dwelling on being alone has perpetuated it.  I decided to shift my messages from the negative and focus on the positive of being the leader of my own single life. 

I have enjoyed personal freedom.  I spend my money as I want.  I sleep in the middle of my bed.  I go where I want when I want. I say yes when it benefits me and no when it doesn't.  I have met some of the most amazing people.  I have not had to live in a house with someone who did not want to be my partner.  My heart is free to love and to be hurt and to love again.  I have proven that I can survive. I make my own happy

There have been many more positive things about being single these last 12 years than cons.  And I am hopeful that one day there will be someone who will come into my life and continue to add to those positive aspects. 

My dozen, when perspectives shift, is a beautiful rainbow of colors, butterflies, and twirling swirls repeating as often as happiness can. Sunny Side Up.

Monday, September 29, 2014

30 days hath September...

And a busy thirty days it has been!
Lots of tests, procedures, doctor visits  and more.  Mostly brought about because my insurance resets on October 1 and I have to climb that steep deductible hill all over again.  So instead I pushed to get as much done before October 1 as possible all with good results, too!  My PET scan came back all clear again - "grossly unremarkable" said the doctor.  Then my blood tests came back all normal.  So my port was successfully removed on the 22nd. Saying I am so happy to have it out is an understatement.  (I am thinking that perhaps when I pass the five year mark, I will get a tattoo over the scar.)  And then finally today I had my one year follow up colonoscopy and it too came back clear!  They want to see me again in three years!
The monitoring/maintenance plan will consist of blood work every three months for four years and a CT scan every six months for the next two years.

I have also cut my hair short with great results.  My post chemo hair is so wavy.  I used to have straight straight (did I mention straight?) hair.  So having all this wave is quite interesting.  Friday night I was told I looked like Katie Couric (which I have heard before) and also Princess Diana which was a new one for me.  Then this morning's nurse also said Princess Diana.  I am very much flattered.

It seems I've been struck by Paco Rabanne's Million again at Café Eau but this time he's an Italian pilot.  Stay tuned, the philosopher's phase 2 could be really really interesting.

Monday, September 15, 2014

A fortnight of emotions

What a fortnight this has been!

I had a wonderful visit with my mother and her companion (#teamgary) in Florida.  Four days of bliss at the beach watching the waves slow dance with the shore, lounging by the swimming pool, attending a University of Florida football game and sipping rumchata nightly.  It was my first trip to Florida without children in nine years.  It was soul restoring.  It was long overdue.

Initially I started this blog posting out of a need to get on paper all that has happened in the last two weeks.  I started writing but it felt too juvenile.  So I started editing it, then it felt too restricted and self-censored.  I was staring at the screen frustrated at the problems I was having at writing this post.  So I walked away and did other things still mulling about which approach would be best, what words should I use and more.  And I realized that my frustration was self-induced.  No matter what I write or how I write it, I will always think it could have been better.  And that self-criticism and self-judgment was impeding my writing today.  So I said to just fuck it, write it - whether it rambles, is in bullet points, whatever just get it out.

So here goes.....

Tuesday, September 2, 2014

I wish I had a river to float away on... (just something I wrote today)


Never in the farthest reaches of my mind did I think I would be burying my wife before we would have spent years graying and losing our hair, getting fat and having our joints ache and creak at every move.  No I never thought that our time would be cut short.  Never thought I would be a widower at 48.  Never thought I would be this intimately connected to grief. No I thought we were going to be together forever.  But forever would have been too short too. 

Oh my sweet;

Oh my heart.

The first time I saw her, she was singing.  I had finished with some court business and needed a drink.  I didn’t know it was karaoke night.  I had just about walked out when I heard her sing.  It was hauntingly beautiful; it cut straight to my core and shook it, violently.  Her voice upturned my whole world.  I walked mesmerized to the bar and never took my eyes off her.   Nor did I take my eyes off her our whole time together.  Even when I slept, it was her face, her smile, her laugh in my dreams.  But the real thrill was opening my eyes to see her lying next to me, my dream come true. How am I supposed to manage now only seeing her in my dreams?

I couldn’t believe my luck.  Here, the most beautiful woman in the world let me in hers.  She let me love her; she let me make her laugh; she let me wipe her tears and caress her hair and hold her close.  She let me kiss her; she let me make love to her.  She let me listen to her sing. She let me love beyond what I thought was humanly possible.  And we were happy, so happy.

When she was diagnosed with cancer, she looked even more beautiful to me.  We approached the news with heavy hearts and minds.  The doctors said it was a complicated case.  We tried everything conventional and everything alternative.  We flew across the country seeing specialists, getting IV therapies, seeking second, third, fourth opinions.  Many sleepless nights I scoured the internet for any news, any hope that we would be able to cure this horrible disease.   She was my world, the reason the sky was so blue and the stars twinkled at night.

I felt helpless as she took the treatments and I watched her body, at first, rally and fight the cancer.  But  the days extended to months and once we passed the projected one-year mark, we both knew that her body wouldn’t be able to fight for much longer. 

I remember when she told me she was done fighting:

With tears spilling from her eyes, she said she didn’t want to do any more treatments.  She was tired and couldn’t bear to deal with any more medicine or the side effects.  She said that she wanted to use whatever energy she had to hold my hand and lay in my arms.  She said she wanted what days we had left to be about us and not about doctors and cancer.  She said “I’m absolutely and totally devastated and gutted that I won’t be around longer.  But I’m done being sick and I’m done being angry.  I just want to be surrounded in your love.  Will you do that for me?”  I grabbed her and pulled her to me, my tears never enough to relieve the sadness inside.  “yes, yes” I whispered to her.  And we just stood there, holding each other.  I felt if I held on to her, no one, and especially not cancer, could take her from me.  So I stood as tall and strong as I could and let her pour her heart and soul into mine.  I would carry all that she needed.  I would be her protector.

After she made the decision to end treatment, her body had a slight rebounding.  I naively hoped that it was a sign that she was getting better and wasn’t actually dying.  But about a month later, it was rudely evident, like a serrated-knife cutting skin rude!  Looking back, I’m glad we had that month.  We did as much on her bucket list as possible.  She asked me one morning to take her out again on the bike.  She said she was feeling strong enough to hold on and wanted to enjoy the sensation of the speed, the wind and the vibration of the bike again.  I’m telling you, I took us on the longest, most beautiful ride ever.  I tried to look at the scenery from her perspective and I think God made the colors that much more vibrant, and gave the wind a touch of cool.  I could feel her smiling behind me and every so often, she would just give me a little squeeze.  I whispered back, I love you too.

I hate this.  I hate remembering!  I don’t want this to be past tense.  I want her here.  I want to be touching her and holding her.  I want to be kissing her again.  I want to see her walk through the front door.  I want to listen to her sing again.  I don’t want to be talking and thinking about the last time we did this or we did that.  I want to wake up from this horrible dream and see her smiling face lying beside me.

When we made love, time stood still for us.  Even on those instances (they were RARE instances) when I came too quickly, time still stopped for us.  Our lovemaking was beyond instinctual; it was as if our two bodies were made exactly for each other.  Everything fit so well from our brains to our souls to our body parts.  I would say that when we made love, it impacted the universe but I might just be overcompensating for the fact that she is gone.  But I do know that it changed me, every single time.

The last time we made love, she initiated. 

She said “please honey.  Would you make love to me? “

I stammered “won’t it hurt?  I don’t want to hurt you.”

“I don’t think so.  Take it easy and slow, sweetie.  Please.”

“okay.” I hesitated. “ I’m scared though.  I might break you.”

“Then dammit, fix things so you won’t break me.  Christ, I just want to get laid!  Did you forget that I have cancer and I’m dying!?”

I looked at her shocked.  I stammered over my words, “I, sorry, I , oh, uh, gawd, give me a minute. I’ll be right back”.

I left the room so I could get my shit together. 

Bear with me, the  memories are just...

After a few deep breaths, I returned to our bedroom.  She was sitting on the edge of the bed with her back to the door.  Her shoulders were drooped and I could tell she was crying.  She said “I’m sorry, dear.  I’m just scared.  I wish I weren’t dying,“ she paused to catch her breath between sobs, “I only wanted you to make love to me so I could feel you inside once more.  To have time stop for us.””   She turned to look at me.  Her eyes were swollen from the tears. Her body was so much thinner than I remembered.  Her remaining hair was doing a poor job of hiding her skull.  The scars from her surgeries, the stretch marks from childbirth and that spot by her heart where the chemotherapy port used to be, glistened and shimmered in the light from the windows. 

“God you’re beautiful.” I said and walked over to her.  I took my time with her.  I touched every inch of her body making a mental map. I held her close and made love to her to last for an eternity.  She cried when I entered her.  I thought I was hurting her.  I asked her if I should stop and she said “no, please don’t ever stop loving me.  Don’t ever stop.”  I replied back that I loved her more than I could ever show.

Afterwards in our bed, cuddling and talking, she took my hand and weaved her fingers in and out of mine.  She looked up at me and said, “Darling, I keep thinking I need to tell you how much I love you and how sorry I am that I got cancer.  I keep thinking that I need you to know how thankful I am to have been your friend, lover, wife and that if I could change things, I would stay alive forever to be with you.”

I tried to shush her but she continued.  “please know all these things.  Please know that for everything I have said, there is so much I didn’t know how to say; that my love for you goes deeper than the words available to describe it.”  She wiped her tears.  “And that there would never have been enough time.  But I thank you for everything.  Everything.”  She sobbed through those last words.  I can still hear her say it.  I can still feel her chest heave with the tears and the breaths.  I can still feel her body fall into a slumber while I held her.  And I can still feel the sting of my tears.

She didn’t last much longer. 

She was surrounded by her family, her children, a few close friends and me.  I was sitting beside her cradling her in my arms, her children touching & holding her as well.  The morphine eased her pain.  I told her it was okay to go.  That I loved her and I always would.  And with her eyes closed & using all the strength she had left, she squeezed her kids’ hands, took three breaths and stopped.

And she was gone.

Just like that.

Saturday, August 30, 2014

I hate cancer!!

My friend from my weekly support group is now in hospice care. She is 42. She did everything right. She is simply amazing. Her husband & 2 daughters are so devoted. There is sooo much love there. I can't stop crying. Crying for them & for me too. I hate cancer & what it does to people. I ask every day why did this happen to me? Have I been spared/cured? If so, why? How long do I have? What should I be doing? Why does the body turn on you? Why? Why? Why? It's just a matter of days now. She is in a lot of pain right now. That her pain will be over is a small, very small,  comfort.
Is it selfish that I am so thankful it is not me on hospice? I hope though that whenever it is my time, that I carry myself with the grace & courage she has. But I don't want to face that for decades upon decades. Decades.
Sorry. I'm a bit of a mess. Alone in the dark, a mess. My heart is so heavy for them; and then my own emotions for me come crashing like waves on a beach before a hurricane.
Sigh, exhale.

Sunday, August 10, 2014

5,000+!

In a little over one year, the Minivan Philosopher has grown from 1,000 views to now over 5,000. Gratitude to my amazing readers who humble me with your interest in my life & my musings. According to my blog's statistics, I have readers from Russia, Turkey, the Middle East, Europe, the UK, Australia, Malaysia, and from coast to coast to coast in the US.

I have so many different ideas & thoughts percolating in my brain that I am excited to get them posted for you here. I'm feeling better physically & emotionally every day so writing is taking less of a toll on me. It's nice to be able to feel the keys again when I'm typing. So hang in there dear readers, bear with me, more is on the way!

However, thank you again for reading. I am glad you do.

Cheers!
-the Philosopher

Wednesday, June 4, 2014

Sparky 2006-2014

The first time I saw him I knew he would become a part of our family.  I was sitting in the minivan with the kids just after church and I spotted two young beagle/lab(?) mix puppies sauntering back and forth across the street having so much fun.  I could almost hear their laughter from the smiles across their faces. 

The children and I worked with another family to corral the two dogs and put them in their backyard.  We fell in love with both dogs immediately but I knew I wouldn't have the stamina to have two puppies.  We left both dogs with the other family for our weekend trip to my brother's place in Oklahoma.  When we came back, the other family asked if we wanted one of the puppies.  We jumped at the chance and crossed our fingers that we could have the one they had named Sparky.  We brought him home that hot August day in 2006.  We were all thrilled.  I was thinking I must be crazy to take on a dog along with raising three children (11, 7 and 3) by myself.  But somehow I knew he belonged with us.

He fit right in.  He bonded with my ladybug and became truly HER dog.  Whenever she was around, he preferred her.  He would tolerate the rest of us but his heart was glued tightly and forever to her.  They played together.  She nursed him through his recovery from the neutering procedure.  (He was approximately 9 months old when he joined our family).  He followed her wherever she went.  He was her best friend.

Ladybug started playing the saxophone in 6th grade that year.  She would sit on the back porch practicing her scales and her lessons while Sparky sat beside her, howling and singing right along with her.  They were my very own lounge act.  I loved it.  She loved it.  And Sparky loved it.

He also loved to hide his prized possessions.  One time my sister gave Sparky (and our other dog Toby - we got him a year after Sparky & that was when I KNEW I was crazy) some chew toys.  Sparky loved getting chew toys and going to work immediately on them. However chew toys that resembled a bone were like gold to Sparky and he would set out to find the best hiding spot for it.  The scene would go like this:

Sparky would lurk around with the 'bone' in his mouth casting sideways glances at the two-legged and four-legged inhabitants, assessing who was watching, was it safe to hide it.  When he felt it was, he'd 'hide' it (maybe under a shoe or next to a back pack or under his sock collection).  And he'd walk back to the living room with the rest of us.  Toby would go 'find' the bone, retrieve it, bring it to the center of the room and start chewing on it.  Sparky would look at him with disbelief that it was found.  He would be thinking "How does he know?  Every. Single. Time?"  Sometimes Sparky would go so far as to hide it outside.  Toby would go out a few minutes later and bring the bone back inside.   Toby would chew on it for a few minutes and then abandon it to sit in the picture window barking at the falling leaves or two-legged creatures who might be breathing one street over. 

Once abandoned Sparky would tip toe back to the bone, pick it up in his mouth and start looking for a better place to hide it.  As long as you were watching him, he'd act like it was no big deal having a bone in his mouth.  Once he thought you weren't watching him, he'd hide it again.  Maybe this time in between shoes or besides the foot of the couch always making sure to creep away from it in order to not draw attention to it.  Within seconds of Sparky hiding it, Toby would be picking it up again.  This would go on for hours.  Watching this dynamic would leave us in stitches.

He loved going on walks around Carondelet Park.  He had to put up with being on a tandem leash and having Toby pull and bark the whole time.  When he did get to go on walks solo, he seemed to relish in the peace and quiet and attempted to pee on every tree, bush, fire hydrant, and mulch pile.  One time Ladybug had him on a walk and when they returned home, Sparky was sopping wet.  I asked what had happened and Ladybug told me through her tears and laughter that he just fell in Boat Lake.  Walking along minding his own business and not paying attention, splash! he went into the water.

He loved his sleep and especially on the big bed in Ladybug's room.  If you entered the room after they had retired for the night, he growled and barked so ferociously that if you didn't know better, you'd be concerned he'd bite your head off.  He was simply being protective.

When Ladybug went off to college and I started my chemo treatments, he followed me around.  He laid on the flokati rug beside my bed; he snuggled next to me on the couch in the basement; he laid beside the couch in the living room.  Wherever my tired, cancer-fighting body was laying he was there.  He would follow me to the kitchen, to the bathroom, outside, to the laundry room.  He became my shadow.  But his heart was still betrothed to Ladybug.  Sometimes when we would Facetime, Sparky would hear her voice and spend the whole convo trying to find her.  We thought it so cute and endearing at the time not thinking that maybe his heart was hurting with her absence.

I thanked Sparky last night for helping me through my chemo treatments, for being there when I couldn't breathe (a side effect of one of the drugs) and giving me a calm, loving face to focus on as I attempted to relax and get air back in my lungs.  I thanked him for keeping me warm all those fucking cold winter days/nights when the cold sensitivity made being anywhere painful.  I apologized to him that I couldn't help him get better.  And I thanked him for staying alive long enough to let Ladybug hold him close and kiss his face while he was put to sleep. 

Our hearts are breaking. Our grief is real.  We loved him so.


 
Sparky
2006-2014
RIP

Friday, April 25, 2014

Post chemo PET Scan results

I had a follow up PET scan on Wednesday, April 23 (7 weeks post chemo) and the preliminary results show NO EVIDENCE of recurrence or metastatic disease!  Yeah!!! Happy Dance!!!!

I know I am breathing easier, dear readers, as you are too.  I meet with my oncologist next week for my first follow up visit.  I envision our conversation will be just as interesting as it was during our bi-weekly visits the last seven months:

Doc: "how are you feeling"

Me: rambling on and on about this side effect and that side effect and giving unsolicited advice on how to better interact with his patients and asking to be prescribed something to relieve the pain in my hands/feet...

Doc: "okay see you in 3 months, bye."

But all that won't bother me because for now (and hopefully forever) I do not have any evidence of cancer.  I do have lingering and painful side effects. It will be so nice when my nerves have healed and my skin is no longer sensitive to everything.  Certain fabrics feel like sandpaper against my skin!  (perfect excuse to purchase a set of 1500 thread count sheets from Amazon... they are A-MAZ-ING!).

I'm also dealing with arthritis in my hands and elbows but my taste buds have rejoined the living world.  Thankfully my hands tire out quickly so holding a fork for a long time is not possible therefore I am not able to overeat and regain all the weight I lost.
Anyway, I am happy.  The sun is shining. The weather is warmer.  And I am healthy. Tons to be thankful for!!!  ((Hugs))

Sunday, March 23, 2014

Love, it's what life's about.

Remembering...

365 days ago I couldn't sleep; I packed & rechecked my bags; I looked at the special gifts I had selected just for my Fox (special chocolates like no other in the world, a beautiful blue tie, a USB filled with special songs, cards with my heart written on every spare inch); I was so ready to be back in his arms & feel his kisses. And I was nervous because it was snowing steadily, would my plane even make it out?

Yep that was then. This is now.

In the morning I met realtors at my grandparents' condo. I packed up grandma's crystal serving dishes & candy jars wondering how I'm going to be able to get rid of it all. In the afternoon I put the second coat of paint on the trim in the Sage's room and thought and thought. There's something about the repetitive motion of painting that lets me trip through my memories undisturbed.  And then Fox and I facetimed. I haven't spoken with him in over a month. Although we talked for nearly an hour, I'm always left feeling like there's so much more I wanted to tell him. I'm still disappointed as I wrote in my previous posting, but I don't let it get to me.   Life is too short to dwell.

He said I still make his stomach flip. He said he wished he could be here with me cuddling. I agreed but told him the cuddle would come after a few well-placed & well-deserved smacks on his arms. He laughed. He got the gist.

After lamenting that time & distance had impeded us (& other things/people too I might add), I reminded him that the Universe has her plans & time frames and we never know what's in store. So don't give up hope, someday it could come true. But don't put your life on hold, because again it's too short. Way. Too. Short.

It was nice to see him, hear his voice, watch him toss his head back when laughing and catch the twinkle in his eyes that entranced me right off my barstool and into his arms.

We're both different from when we first met, yet the same too. I like that. The link above recorded how I felt on the anniversary of our meeting... Even with all the ups, downs, sideways and 360degree rotations, there is still a Fox print engraved on my heart & soul. Don't worry dear readers, I'm still moving forward with my life. Just letting the Universe do her thing... and thanking her for the beauty & love that surrounds me even if it's 4199 miles away.

Okay enough of the mushy stuff, here's the latest cancer update:
23 days post chemo... Hair not falling out, actually have wisps of new growth; still get fatigued but been going to Zumba twice/week & trying to move more so my muscles gain strength back; numbness & tingling continue in fingers & balls of feet accompanied by annoying spasms of my ankle tendons... Let's just say WEIRD!!!

PET scan April 23, see oncologist April 29. First port flush on April 7.

Sad news: one of my support group buddies died from pancreatic cancer last week. He fought it for 2.5 years. I hope he was able to get all the family home movies transferred to DVD like he wanted.

Sad news 2.0: met a woman diagnosed jan 2013 w gallbladder cancer. She had surgery, did preventative chemo (adjuvant like I did) & her cancer came back in January 2014 & this time docs have given her 6 months to live. Ugh my heart just breaks for her. She's 42 & has two boys 8 & 10!
I have so many thoughts that race through my mind regarding cancer but it will have to be another post.

And finally sad news 3.0: my former exercise instructor (not Zumba) at the Y was recently diagnosed with leukemia. She is 41, in TOP NOTCH physical shape, has no insurance & two young kids (under 5 years old).... Why oh why oh why?

Did I mention that life is too short?

Hug your loved ones, call those friends on your mind, make & keep lunch/dinner dates, laugh as often as possible, put love first... In other words LIVE while you can.

Peace, love & hugs to all of you my dear readers wherever you are in our Universe.
-the Philosopher

Wednesday, February 5, 2014

T minus 23... alternate title "Dog gets to live one more day!"

It's cold and only going to get colder this week.  Kind of irritating because this is my "good week" and I was looking forward to being social.  But when temps are going to be 0 degrees F and below with 3-5 inches of snow on the ground, it makes it hard for anyone to go out and be social, much less me - the chemo patient!

And to add insult to injury, my dog chewed the thumb off my leather gloves!!! He already chewed up the leather on my great Strength bracelet that a friend gave me the other day.  So bummed about that!  I realize the dog is dealing with anxiety, Ladybug isn't here and my other dog is being fostered at a friend's until I'm done with chemo.  But seriously, leave my shit alone!

Yesterday's group support session was sobering as we had a new person join us and she is in palliative care.  This is where they don't try to treat the disease anymore; they just provide medications to ease the pain.  She was so sad.  Her eyes were profoundly hurting.  I didn't know what to say to her;  I wanted to make her smile or laugh but she didn't.  I left group with a heaviness in my heart because I don't know what I would do or how I would be if I were in her shoes.  I am so close to being done with my treatment (23 days!!) and I see my "life" resuming and cancer never coming back.  And I shed tears that mine was caught when it was; no one truly understands the magnitude of my gratitude.  But it's not for them to understand anyway.  It's mine.

Yesterday I talked about how this journey has taught me at least one thing:  to maximize my interactions with people (friends, family and strangers who will soon be friends) because you never know when you won't be able to do that anymore.  I'm not trying to be morbid here, just realistic, and so very contemplative.  A snow day will do that to you. 

I promise, dear readers, that I do have more funny stories to write about, so don't give up.  It won't always be about cancer, cancer, cancer.  And I'm looking forward to that as well!!!

Thanks for caring!
xx- The Philosopher

Monday, January 20, 2014

Boys to Men

There was a small pile in the hall outside the Sage's room. I asked him what the pile was for, why was it there? He replied, "To donate to Goodwill, Mom."  I said "Oh that's right, Thursday, yes."

I looked closely at what he was giving away. It was clearly things he didn't need anymore. I got a little choked up when I saw the Spider-man sheets & the Scooby-Doo pillowcases. I don't have any more little boys in the house. Ones who would run & jump from couch to chair or who would fly from room to room with action figures in their hands & superhero capes fastened to their Jammie's. No more little boys asking to watch Shrek or Monster House for the millionth time. Or who would stand atop their red wagon outside belting out Sonia Dada's "lover lover you don't treat me no good no more" because I played it too many times while driving the minivan. No more little boys who were thrilled to receive a balloon for no reason or who collected Yu-Gi-Oh cards or built elaborate cities first with their Thomas the Train sets and then next with their Legos.  No more little boys who instinctually held my hand when walking with me or who didn't think twice about kissing me good night.  And who very innocently declared that I must have been the girl James Blunt was singing about in his song, "You're Beautiful".

No somehow, someway when my head was turned or I was napping on the couch, my little boys grew up. They have bigger beds now to hold their bigger feet. They watch MTV2 & laugh uncontrollably. They Facebook & Twitter & Instagram. They play hard and sing loudly "their songs" not mine.

But even though they're growing up, they still hug me, still talk to me about everything (and I mean EVERYTHING!). They don't hold my hand when crossing the street but they put their arms out to stop me from getting hit by the car "that just appeared out of nowhere." They listen to me as I go through chemo & do what they can to ease my pain or discomfort. We laugh & joke & cry together.  But instead of them only leaning on my shoulders, we lean on each other's.

Yes I am a bit sad that my little boys are gone, but I love the men they are becoming.  And so I move the donation pile to the front door for Thursday. It's okay. It's all okay.