Showing posts with label speedbumps and detours. Show all posts
Showing posts with label speedbumps and detours. Show all posts

Friday, August 19, 2016

It's in the Production phase!

Hello! It's been a while, that's for sure. I've been working diligently editing my book, Midnight Playground Where the Soul Plays. It has taken me almost as long to edit it as it did to write it. But I have to say, it's really good.  The feedback from my beta-readers has been amazing and encouraging.

I sent the final draft and the cover artwork to the publisher two days ago.  Now I'm working on creating the social media presence for my book and developing the brand, Simone M Richards - author.  I'm learning TONS!  Eventually I will be migrating the Minivan Philosopher over to Simone's blog and website.  You will be notified when that happens.

It seems very surreal. The book could be available as soon as Christmas and as late at March.  Either way, I know that when it's ready it will be the right time for me. I've had wonderful support throughout the whole process from my family, my friends and my editor.  His feedback is immeasurable!  He saved the world from my first draft, ha ha ha!

I'm excited to get this underway and then head back to my keyboard and my office/study at home.  I've treated myself to an upstairs study. I kicked the Rockstar to the basement and moved the Sage to another room so I could have my own library/office/study.  I feel like a proper grownup now.  The Rockstar protested initially but I think he kind of likes his mini apartment in the basement.  Of course, I have to remind myself when I go down there to get to the laundry room, that the putrid smell is of his soccer cleats and not a dead animal.  He'll be off to college in twelve months. I'll miss him but not that smell.

Anyway, I apologize that I've been a bit neglectful to you here at Minivan Philosopher and wanted to update you. It's exciting times for me and pretty much everyone connected to me.

I saw this on a wooden sign at a store in Chicago recently.
She believe she could, so she did

Yep, you're right. I bought it.

Oh and it's been three years since my surgery and I'm still cancer-free!!!!


The Ferris Wheel in Seattle!  Yeah, I've been vacationing a bit as well as writing and editing. I'll post pics from our absolutely beautiful hikes in Oregon and Seattle, Washington soon.
Cheers!

Wednesday, June 29, 2016

So long, farewell!

I have believed, and have been proven correct in my belief time and time again,  that most men end up eliminating themselves from consideration or inclusion in my life all by their lonesomes. Some do it in a more spectacularly disastrous manner than others. The last one takes the cake. #hiddenracist, #stupidracistcommentcostmemygirlfriend, and #secretlyrelievedhesgone. Still processing what I'm gonna say to him the next time I have the chance.

I have NO room in my life or soul for hidden or out in the open bigots.

Goodbye.

Don't
Call.

Wednesday, February 3, 2016

Midnight Playground: Where the Soul Plays is at the publishers!!!

Last week I sent my publishing team the manuscript.  It is now in the content review and editorial assessment stage.  Holy Cow!!!

As soon as I hit the "send" button, I felt like throwing up.  My stomach was tied in a million knots and my arm pits started sweating.  This is my physical reaction when I'm excited and scared and nervous all at the same time.  I was thankful I had already booked a 4:30 yoga class as I needed it desperately to calm my insides and quiet my mind.  I was so happy to be doing side planks even though the are not my most favorite pose.  However, my mind had to stay focused on the plank at hand which was a relief from the constant chatter of my meandering mind.

As I left the studio after class, I felt much calmer and more in control.  I felt again aligned with the universe and what is supposed to happen in my life.  It was a huge step sending off the manuscript.  I feel good.  I know I have a LOT of work ahead of me to promote Midnight Playground: Where the Soul Plays and to get people interested in reading it.  I also feel deep down in my gut that it is going to be a LOT of fun!

In the week since I have tackled some home improvement projects and made progress on my to-do list.  You know, things that piled up (including my laundry) while I was focused on the book.  It feels good to reclaim all of my spaces (emotional, physical, internal and external).  And I'm ready to start finishing my other two books (Purg-a-Tory and 4199)... Life is good. :-)

Friday, July 31, 2015

My Journey, His Journey, Your Journey, Our Journey

And I'm not talking about the band Journey although the title of this blog post could easily be on a flyer for any karaoke bar here in St. Louis...

No I'm talking about that path we all march on from birth to death... our journey.

Sometimes it crosses others, sometimes it merges, sometimes it veers right when others go left.  The only consistent part is that you are still on it, on your path.  Only you can walk it, dance it, run it, drive it.  Sometimes we want to keep our journeys merged with other people's because it is more fun, more interesting, we love them or we are afraid to be alone on our own journey.  But what do you do, how do you cope when the paths diverge and you weren't ready yet?  Or you thought you weren't ready?

TRUST.  Yep that little word.  You must surrender to trust in your path. Sure, you can be sad that you won't be walking, dancing or running together anymore.  Please, shed some tears too.  Those are all good and necessary to healing and to seeing your way clearly on your own path again.  Try your best to fight the urge to analyze under a microscope every step you made while on the merged path.  Try your best to not be angry at your fellow sojourner who took the fork in the road which was only evident on his/her map.  If you can allow yourself to trust that you are walking down the path exactly as it is supposed to be, you can look forward to all that you are about to encounter, and you can be grateful for all that you have already walked.  Sometimes your paths will cross again or merge again and then that section of your journey(s) is even better than the first time.  But sometimes they do not ever come into contact again, and you have to trust that that was just how it was meant to be.

I walk mine.  You walk yours.  Sometimes we walk it together.

Until our paths cross again, god speed...

-the Philosopher

Friday, April 17, 2015

Liability

"Hello?  You left a message for me to call you back? This is the minivan philosopher." I offered to the woman on the other line.

"So we wanted you to be aware of your liability for the CT scan your oncologist has ordered for you." said the woman on the phone.

"Yes?" I replied, holding my breath.

"Okay so your liability is $2,345.00" she almost whispered as if embarrassed to say that figure to me.

"Oh??  Is that the final cost after insurance?" I gulped.

"That's your estimated liability." she replied.

"Well I don't have it.  I guess you will have to bill me." I clipped.

"I will make a note of that." she replied.

"Thank you. Good bye."  I said.

"Goodbye." she replied.

Click.

Yep.  That's my post-cancer diagnosis, ongoing monitoring life.  What am I supposed to do?  I've been having butterfly sensations floating around in my abdomen for a few weeks now.  I told my oncologist about it at my follow up and he said let's do a CT to make sure nothing is going on.  I agreed because I want to know if there is anything I need to worry about.  So I make the decision to go further into debt for peace of mind?  Or do I cancel the scan because I don't have the money to pay my estimated liability and risk that there is something significant going on?  And maybe die of cancer?

The ongoing financial stresses of having a cancer diagnosis and its subsequent treatment (chemo, surgery, medicines, doctor visits, blood tests etc) dishes out as much suffering as all those words contained in the parentheses.  In fact, it's worse because the institutions don't give a rat's *ss about who you are, you are simply an account receivable.

I find myself feeling angry at the helplessness again.  Since my cancer diagnosis in July 2013, I have shouldered the entire financial cost myself.  I didn't start any gofundme campaign.  I didn't ask anyone to help pay a bill.  Not any friends or family.  I didn't get any either.  I did receive help in the form of rides, some meals for my boys and a few giftcards every now and then.  But nothing to help me chip away at the $10,000 or so in bills for which I was "liable'.  And now I've got another $2300 to add to it.  Yippee! Wonderful!  Please sir, can I have another?

I don't know what to do.  I am too young for Medicare.  I have a full-time, good-paying job with insurance so I can't have the state pay for my medical care.  So I'm basically fucked financially for the next five years while I'm monitored by my doctors.

Sigh. 

Cancer... the gift that keeps on giving even when you've said "enough!!"

Sunday, March 29, 2015

Four words

"Get your own water."

"I'm on my way."

The first sentence has scarred me with me many years of pain and confusion and feelings of worthlessness. The second sentence brought tears to my eyes because of all those years of pain and confusion and feeling worthless.

When my ex-husband and I were first dating over 22 years ago, I would ask him to fill my glass of water if he were getting up to go to the kitchen. It was one of those "hey while you're up, would you mind getting me ..." sorts of requests. I didn't think anything of it. I didn't think it was a big deal. A few months in to dating each other, he said to me that he hated when I would ask him for water and that he felt I was taking advantage of him and that I was just being lazy. I never asked him for another glass of water. It hurt when he said that. Had I known then what I know now, I would never have continued dating him nor married him but I didn't. I was young; I was a people pleaser. Those four words "get your own water" became ingrained into my psyche way down deep. The man I loved didn't think I was special enough to bring me water when I asked, so obviously I wasn't special enough to matter to anyone especially other men.

I have been divorced over ten years.  Who would have thought that I would still be feeling the after effects of those four words?

But last night as I sat in 007's car tears welling up in my eyes because I was overwhelmed by his kindness towards me. A simple act that he didn't think twice about almost knocked my core being completely flat.  He came to pick me up, to drive me home after an all-day pub crawl I had been on so I wouldn't have to drive home.  His text "I'm on my way" brought tears to my eyes.

Not only did he drive twenty minutes to get me, he parked & came inside the bar to find me. I was expecting that he would drive up, text me he was outside & I would leave. And I would have been okay with that because that's what I was used to, how a not special-enough person is treated, always feeling that I had been too much of a burden already, I couldn't possibly ask for anything more. I didn't ask him to come get me, my girlfriend made the telephone call. It didn't take much convincing on her part. She asked, explained the situation and he said he was on his way. Why was I so afraid to ask him? Because I was afraid he'd tell me no, to get my own water, reinforcing my belief that I wasn't worthy.

But he didn't. He came. He took care of me because I am special & because he is kind.

I'm moving through new emotional waters here. It's going to be hard to undo 20+ years of negative self-talk, to realize that people (including men) will do nice things for me because they want to & because they like me, not because of what they can get from me in return. I am so grateful, so eternally grateful, that the universe is giving me this gift of growth towards acceptance & healing and that 007 is her chosen tool.

I'm on my way.

Tuesday, September 2, 2014

I wish I had a river to float away on... (just something I wrote today)


Never in the farthest reaches of my mind did I think I would be burying my wife before we would have spent years graying and losing our hair, getting fat and having our joints ache and creak at every move.  No I never thought that our time would be cut short.  Never thought I would be a widower at 48.  Never thought I would be this intimately connected to grief. No I thought we were going to be together forever.  But forever would have been too short too. 

Oh my sweet;

Oh my heart.

The first time I saw her, she was singing.  I had finished with some court business and needed a drink.  I didn’t know it was karaoke night.  I had just about walked out when I heard her sing.  It was hauntingly beautiful; it cut straight to my core and shook it, violently.  Her voice upturned my whole world.  I walked mesmerized to the bar and never took my eyes off her.   Nor did I take my eyes off her our whole time together.  Even when I slept, it was her face, her smile, her laugh in my dreams.  But the real thrill was opening my eyes to see her lying next to me, my dream come true. How am I supposed to manage now only seeing her in my dreams?

I couldn’t believe my luck.  Here, the most beautiful woman in the world let me in hers.  She let me love her; she let me make her laugh; she let me wipe her tears and caress her hair and hold her close.  She let me kiss her; she let me make love to her.  She let me listen to her sing. She let me love beyond what I thought was humanly possible.  And we were happy, so happy.

When she was diagnosed with cancer, she looked even more beautiful to me.  We approached the news with heavy hearts and minds.  The doctors said it was a complicated case.  We tried everything conventional and everything alternative.  We flew across the country seeing specialists, getting IV therapies, seeking second, third, fourth opinions.  Many sleepless nights I scoured the internet for any news, any hope that we would be able to cure this horrible disease.   She was my world, the reason the sky was so blue and the stars twinkled at night.

I felt helpless as she took the treatments and I watched her body, at first, rally and fight the cancer.  But  the days extended to months and once we passed the projected one-year mark, we both knew that her body wouldn’t be able to fight for much longer. 

I remember when she told me she was done fighting:

With tears spilling from her eyes, she said she didn’t want to do any more treatments.  She was tired and couldn’t bear to deal with any more medicine or the side effects.  She said that she wanted to use whatever energy she had to hold my hand and lay in my arms.  She said she wanted what days we had left to be about us and not about doctors and cancer.  She said “I’m absolutely and totally devastated and gutted that I won’t be around longer.  But I’m done being sick and I’m done being angry.  I just want to be surrounded in your love.  Will you do that for me?”  I grabbed her and pulled her to me, my tears never enough to relieve the sadness inside.  “yes, yes” I whispered to her.  And we just stood there, holding each other.  I felt if I held on to her, no one, and especially not cancer, could take her from me.  So I stood as tall and strong as I could and let her pour her heart and soul into mine.  I would carry all that she needed.  I would be her protector.

After she made the decision to end treatment, her body had a slight rebounding.  I naively hoped that it was a sign that she was getting better and wasn’t actually dying.  But about a month later, it was rudely evident, like a serrated-knife cutting skin rude!  Looking back, I’m glad we had that month.  We did as much on her bucket list as possible.  She asked me one morning to take her out again on the bike.  She said she was feeling strong enough to hold on and wanted to enjoy the sensation of the speed, the wind and the vibration of the bike again.  I’m telling you, I took us on the longest, most beautiful ride ever.  I tried to look at the scenery from her perspective and I think God made the colors that much more vibrant, and gave the wind a touch of cool.  I could feel her smiling behind me and every so often, she would just give me a little squeeze.  I whispered back, I love you too.

I hate this.  I hate remembering!  I don’t want this to be past tense.  I want her here.  I want to be touching her and holding her.  I want to be kissing her again.  I want to see her walk through the front door.  I want to listen to her sing again.  I don’t want to be talking and thinking about the last time we did this or we did that.  I want to wake up from this horrible dream and see her smiling face lying beside me.

When we made love, time stood still for us.  Even on those instances (they were RARE instances) when I came too quickly, time still stopped for us.  Our lovemaking was beyond instinctual; it was as if our two bodies were made exactly for each other.  Everything fit so well from our brains to our souls to our body parts.  I would say that when we made love, it impacted the universe but I might just be overcompensating for the fact that she is gone.  But I do know that it changed me, every single time.

The last time we made love, she initiated. 

She said “please honey.  Would you make love to me? “

I stammered “won’t it hurt?  I don’t want to hurt you.”

“I don’t think so.  Take it easy and slow, sweetie.  Please.”

“okay.” I hesitated. “ I’m scared though.  I might break you.”

“Then dammit, fix things so you won’t break me.  Christ, I just want to get laid!  Did you forget that I have cancer and I’m dying!?”

I looked at her shocked.  I stammered over my words, “I, sorry, I , oh, uh, gawd, give me a minute. I’ll be right back”.

I left the room so I could get my shit together. 

Bear with me, the  memories are just...

After a few deep breaths, I returned to our bedroom.  She was sitting on the edge of the bed with her back to the door.  Her shoulders were drooped and I could tell she was crying.  She said “I’m sorry, dear.  I’m just scared.  I wish I weren’t dying,“ she paused to catch her breath between sobs, “I only wanted you to make love to me so I could feel you inside once more.  To have time stop for us.””   She turned to look at me.  Her eyes were swollen from the tears. Her body was so much thinner than I remembered.  Her remaining hair was doing a poor job of hiding her skull.  The scars from her surgeries, the stretch marks from childbirth and that spot by her heart where the chemotherapy port used to be, glistened and shimmered in the light from the windows. 

“God you’re beautiful.” I said and walked over to her.  I took my time with her.  I touched every inch of her body making a mental map. I held her close and made love to her to last for an eternity.  She cried when I entered her.  I thought I was hurting her.  I asked her if I should stop and she said “no, please don’t ever stop loving me.  Don’t ever stop.”  I replied back that I loved her more than I could ever show.

Afterwards in our bed, cuddling and talking, she took my hand and weaved her fingers in and out of mine.  She looked up at me and said, “Darling, I keep thinking I need to tell you how much I love you and how sorry I am that I got cancer.  I keep thinking that I need you to know how thankful I am to have been your friend, lover, wife and that if I could change things, I would stay alive forever to be with you.”

I tried to shush her but she continued.  “please know all these things.  Please know that for everything I have said, there is so much I didn’t know how to say; that my love for you goes deeper than the words available to describe it.”  She wiped her tears.  “And that there would never have been enough time.  But I thank you for everything.  Everything.”  She sobbed through those last words.  I can still hear her say it.  I can still feel her chest heave with the tears and the breaths.  I can still feel her body fall into a slumber while I held her.  And I can still feel the sting of my tears.

She didn’t last much longer. 

She was surrounded by her family, her children, a few close friends and me.  I was sitting beside her cradling her in my arms, her children touching & holding her as well.  The morphine eased her pain.  I told her it was okay to go.  That I loved her and I always would.  And with her eyes closed & using all the strength she had left, she squeezed her kids’ hands, took three breaths and stopped.

And she was gone.

Just like that.

Wednesday, June 4, 2014

Sparky 2006-2014

The first time I saw him I knew he would become a part of our family.  I was sitting in the minivan with the kids just after church and I spotted two young beagle/lab(?) mix puppies sauntering back and forth across the street having so much fun.  I could almost hear their laughter from the smiles across their faces. 

The children and I worked with another family to corral the two dogs and put them in their backyard.  We fell in love with both dogs immediately but I knew I wouldn't have the stamina to have two puppies.  We left both dogs with the other family for our weekend trip to my brother's place in Oklahoma.  When we came back, the other family asked if we wanted one of the puppies.  We jumped at the chance and crossed our fingers that we could have the one they had named Sparky.  We brought him home that hot August day in 2006.  We were all thrilled.  I was thinking I must be crazy to take on a dog along with raising three children (11, 7 and 3) by myself.  But somehow I knew he belonged with us.

He fit right in.  He bonded with my ladybug and became truly HER dog.  Whenever she was around, he preferred her.  He would tolerate the rest of us but his heart was glued tightly and forever to her.  They played together.  She nursed him through his recovery from the neutering procedure.  (He was approximately 9 months old when he joined our family).  He followed her wherever she went.  He was her best friend.

Ladybug started playing the saxophone in 6th grade that year.  She would sit on the back porch practicing her scales and her lessons while Sparky sat beside her, howling and singing right along with her.  They were my very own lounge act.  I loved it.  She loved it.  And Sparky loved it.

He also loved to hide his prized possessions.  One time my sister gave Sparky (and our other dog Toby - we got him a year after Sparky & that was when I KNEW I was crazy) some chew toys.  Sparky loved getting chew toys and going to work immediately on them. However chew toys that resembled a bone were like gold to Sparky and he would set out to find the best hiding spot for it.  The scene would go like this:

Sparky would lurk around with the 'bone' in his mouth casting sideways glances at the two-legged and four-legged inhabitants, assessing who was watching, was it safe to hide it.  When he felt it was, he'd 'hide' it (maybe under a shoe or next to a back pack or under his sock collection).  And he'd walk back to the living room with the rest of us.  Toby would go 'find' the bone, retrieve it, bring it to the center of the room and start chewing on it.  Sparky would look at him with disbelief that it was found.  He would be thinking "How does he know?  Every. Single. Time?"  Sometimes Sparky would go so far as to hide it outside.  Toby would go out a few minutes later and bring the bone back inside.   Toby would chew on it for a few minutes and then abandon it to sit in the picture window barking at the falling leaves or two-legged creatures who might be breathing one street over. 

Once abandoned Sparky would tip toe back to the bone, pick it up in his mouth and start looking for a better place to hide it.  As long as you were watching him, he'd act like it was no big deal having a bone in his mouth.  Once he thought you weren't watching him, he'd hide it again.  Maybe this time in between shoes or besides the foot of the couch always making sure to creep away from it in order to not draw attention to it.  Within seconds of Sparky hiding it, Toby would be picking it up again.  This would go on for hours.  Watching this dynamic would leave us in stitches.

He loved going on walks around Carondelet Park.  He had to put up with being on a tandem leash and having Toby pull and bark the whole time.  When he did get to go on walks solo, he seemed to relish in the peace and quiet and attempted to pee on every tree, bush, fire hydrant, and mulch pile.  One time Ladybug had him on a walk and when they returned home, Sparky was sopping wet.  I asked what had happened and Ladybug told me through her tears and laughter that he just fell in Boat Lake.  Walking along minding his own business and not paying attention, splash! he went into the water.

He loved his sleep and especially on the big bed in Ladybug's room.  If you entered the room after they had retired for the night, he growled and barked so ferociously that if you didn't know better, you'd be concerned he'd bite your head off.  He was simply being protective.

When Ladybug went off to college and I started my chemo treatments, he followed me around.  He laid on the flokati rug beside my bed; he snuggled next to me on the couch in the basement; he laid beside the couch in the living room.  Wherever my tired, cancer-fighting body was laying he was there.  He would follow me to the kitchen, to the bathroom, outside, to the laundry room.  He became my shadow.  But his heart was still betrothed to Ladybug.  Sometimes when we would Facetime, Sparky would hear her voice and spend the whole convo trying to find her.  We thought it so cute and endearing at the time not thinking that maybe his heart was hurting with her absence.

I thanked Sparky last night for helping me through my chemo treatments, for being there when I couldn't breathe (a side effect of one of the drugs) and giving me a calm, loving face to focus on as I attempted to relax and get air back in my lungs.  I thanked him for keeping me warm all those fucking cold winter days/nights when the cold sensitivity made being anywhere painful.  I apologized to him that I couldn't help him get better.  And I thanked him for staying alive long enough to let Ladybug hold him close and kiss his face while he was put to sleep. 

Our hearts are breaking. Our grief is real.  We loved him so.


 
Sparky
2006-2014
RIP

Friday, April 25, 2014

Post chemo PET Scan results

I had a follow up PET scan on Wednesday, April 23 (7 weeks post chemo) and the preliminary results show NO EVIDENCE of recurrence or metastatic disease!  Yeah!!! Happy Dance!!!!

I know I am breathing easier, dear readers, as you are too.  I meet with my oncologist next week for my first follow up visit.  I envision our conversation will be just as interesting as it was during our bi-weekly visits the last seven months:

Doc: "how are you feeling"

Me: rambling on and on about this side effect and that side effect and giving unsolicited advice on how to better interact with his patients and asking to be prescribed something to relieve the pain in my hands/feet...

Doc: "okay see you in 3 months, bye."

But all that won't bother me because for now (and hopefully forever) I do not have any evidence of cancer.  I do have lingering and painful side effects. It will be so nice when my nerves have healed and my skin is no longer sensitive to everything.  Certain fabrics feel like sandpaper against my skin!  (perfect excuse to purchase a set of 1500 thread count sheets from Amazon... they are A-MAZ-ING!).

I'm also dealing with arthritis in my hands and elbows but my taste buds have rejoined the living world.  Thankfully my hands tire out quickly so holding a fork for a long time is not possible therefore I am not able to overeat and regain all the weight I lost.
Anyway, I am happy.  The sun is shining. The weather is warmer.  And I am healthy. Tons to be thankful for!!!  ((Hugs))

Sunday, March 23, 2014

Love, it's what life's about.

Remembering...

365 days ago I couldn't sleep; I packed & rechecked my bags; I looked at the special gifts I had selected just for my Fox (special chocolates like no other in the world, a beautiful blue tie, a USB filled with special songs, cards with my heart written on every spare inch); I was so ready to be back in his arms & feel his kisses. And I was nervous because it was snowing steadily, would my plane even make it out?

Yep that was then. This is now.

In the morning I met realtors at my grandparents' condo. I packed up grandma's crystal serving dishes & candy jars wondering how I'm going to be able to get rid of it all. In the afternoon I put the second coat of paint on the trim in the Sage's room and thought and thought. There's something about the repetitive motion of painting that lets me trip through my memories undisturbed.  And then Fox and I facetimed. I haven't spoken with him in over a month. Although we talked for nearly an hour, I'm always left feeling like there's so much more I wanted to tell him. I'm still disappointed as I wrote in my previous posting, but I don't let it get to me.   Life is too short to dwell.

He said I still make his stomach flip. He said he wished he could be here with me cuddling. I agreed but told him the cuddle would come after a few well-placed & well-deserved smacks on his arms. He laughed. He got the gist.

After lamenting that time & distance had impeded us (& other things/people too I might add), I reminded him that the Universe has her plans & time frames and we never know what's in store. So don't give up hope, someday it could come true. But don't put your life on hold, because again it's too short. Way. Too. Short.

It was nice to see him, hear his voice, watch him toss his head back when laughing and catch the twinkle in his eyes that entranced me right off my barstool and into his arms.

We're both different from when we first met, yet the same too. I like that. The link above recorded how I felt on the anniversary of our meeting... Even with all the ups, downs, sideways and 360degree rotations, there is still a Fox print engraved on my heart & soul. Don't worry dear readers, I'm still moving forward with my life. Just letting the Universe do her thing... and thanking her for the beauty & love that surrounds me even if it's 4199 miles away.

Okay enough of the mushy stuff, here's the latest cancer update:
23 days post chemo... Hair not falling out, actually have wisps of new growth; still get fatigued but been going to Zumba twice/week & trying to move more so my muscles gain strength back; numbness & tingling continue in fingers & balls of feet accompanied by annoying spasms of my ankle tendons... Let's just say WEIRD!!!

PET scan April 23, see oncologist April 29. First port flush on April 7.

Sad news: one of my support group buddies died from pancreatic cancer last week. He fought it for 2.5 years. I hope he was able to get all the family home movies transferred to DVD like he wanted.

Sad news 2.0: met a woman diagnosed jan 2013 w gallbladder cancer. She had surgery, did preventative chemo (adjuvant like I did) & her cancer came back in January 2014 & this time docs have given her 6 months to live. Ugh my heart just breaks for her. She's 42 & has two boys 8 & 10!
I have so many thoughts that race through my mind regarding cancer but it will have to be another post.

And finally sad news 3.0: my former exercise instructor (not Zumba) at the Y was recently diagnosed with leukemia. She is 41, in TOP NOTCH physical shape, has no insurance & two young kids (under 5 years old).... Why oh why oh why?

Did I mention that life is too short?

Hug your loved ones, call those friends on your mind, make & keep lunch/dinner dates, laugh as often as possible, put love first... In other words LIVE while you can.

Peace, love & hugs to all of you my dear readers wherever you are in our Universe.
-the Philosopher

Wednesday, March 5, 2014

All side effects present and accounted for...

Wow, my last chemo treatment really wants to make it memorable!  It seems that 95% of the side effects are in play this go-around.  Two that haven't made an appearance yet are the continuing hair loss and the frog-in-throat issue (makes for very difficult swallowing).  But fatigue, muscle weakness, chemo brain (feel like I'm in la-la land, at least I don't feel angry), super-duper cold sensitivity, numb fingertips, millions of nails stabbing my jaws, stinging tears (I mean the kind that you immediately stop crying because the stinging registers a 10 on the pain scale), and chemo flatulence that can clear a room (thankfully it's just been me and the dog the last few days and I blame it all on him!) are all present and accounted for, reluctantly. 

It would have been nice if number 12 could have been like a long, luxurious massage from a well-tanned, bare-chested, non-English speaking, prime specimen of a man that leaves you breathless for days, even weeks.  But no, instead, it's like a visit from the makers of torture chambers who need to try out their latest pain-maker on an unwilling-but-realize-it's-necessary-to-be-cured victim.

Anyway, I'm simply continuing to incorporate all my 'healing' methods and drinking as much water as possible to flush the Oxiliplantin, the Leucoverin, and the 5-FU from my body.  It's been 7 days since my last infusion and 5 since disconnect and they've been tough.  But, I am done.  So that keeps me focused on recovery and hopeful for the days ahead.

Some very good news that I wanted to share.  Yesterday, I had a follow up colonoscopy because I had experienced some bleeding again.  Yes, talk about freaking the fuck out that day and the days that followed!  I felt like I was going back to the scene of the crime (otherwise known as "diagnosis day").  I was put in the same preparation bay as before and had the same doctor as before. That was the extent of the 'sameness'.  This time I was in a different operating room, (I call it the "good news" room).  And everything came out GREAT!!!  I've got a nice, clean, cancer-free colon, & no hemorrhoids either.  Doctor thinks that the bleeding may have come from the surgical site (where they resected my colon) because it looked a little inflamed, said it wasn't anything to worry about. She wants me to have another one in six months.  We were both very pleased with the outcome of this colonoscopy.  Very.

I have a follow-up PET scan on May 22 and a follow-up visit with my oncologist May 29.  Feeling pretty good at my chances.  Looking forward to being able to call myself a 'cancer survivor'...


One of the beautiful bouquets I received on my last chemo day

Saturday, March 1, 2014

C'est Fini!

It's done.  My final chemo treatment.  No more.  Can't explain the overwhelming sense of relief to finally be here.  I never want to go back, ever!

Just resting and dealing with side effects.

But I'm done.  I made it.  Dance a little jig for me.

Wednesday, February 26, 2014

24 hours

That's all that's left till I start my 12th & final chemo treatment. I honestly never thought I'd get here in one piece with any sanity left. But I am and there's a few marbles still rattling about my brain, thankfully.

One more set of days where I feel physically awful. Just one more. Then you, my readers, will get to read about my wonderful recovery journey. Can't wait? Me neither.

Cheers!

Thursday, February 13, 2014

Number 11 done!!

Home from chemo treatment 11. Tired, feeling a little nauseated, having chemo hot flashes & my legs are tingling from the brief time I was outside. It's a gorgeous day but I think I gotta miss it. Oh well only 16 more days!!!

Talk to you later, dear readers!

Monday, February 10, 2014

Dating at this age...

 
Dating at this age can be a roll-your-eyes-and-shake-your-fist-at-the-sky rollercoaster of interactions.  In my 11 years of singlehood, there have been a handful of knock-your-socks-off-and-sing-hallelujah experiences.  (Some of which have been chronicled here on the Minivan Philosopher.)   But mostly and especially lately it's been the former and not the latter.

Example 1:
Last week I received a cave painting (text) from a guy I had been seeing whose PTSD flared up and pretty much brought to a screeching halt any forward momentum we had been experiencing. I told him he needed to resume counseling and get on some medication to bring a balance to his life.  That he deserved to live a life that was more settled and that his children deserved that too.  I told him to call me when he felt he was "balanced."  He agreed with me and started back immediately with his doctors and therapists at the VA.  Occasionally I would message him and ask how he was doing.  Sometimes he would reply and other times, not.  But in his last cave painting after telling me what an awesome person I am and how glad he was to have met me (blah blah blah you get the gist), he said he needed to focus on himself and wasn't in any shape ready for a relationship and didn't want to make a promise to me he couldn't support (blah blah blah we've all heard this before) but then he closed his text with this... are you ready for the kicker... and R (his ex-wife) "has been absolutely amazing during this debacle, I might be getting back with my family"!

I laughed when I read the last part.  This was a first for me.  I had never sent a man BACK to his ex-wife before.  Oh well I thought, he came into my life at exactly the right time.  We had had some great fun before the PTSD episode.  He got my car fixed, tires balanced and detailed. He helped me through two chemo weekends and got me my snow boots!  I am really grateful for all that (especially the car stuff and snow boots) and accept that that was to be the extent of our 'relationship'. He is a kind, good man who just has issues bigger than I want/need in my life.  I wish him well in his quest to get balanced and, of course, good luck with the whole ex-wife not being the ex-wife anymore thing.

Example 2:
So I've been exchanging a few emails with a guy on the internet dating site.  I haven't scheduled a "meet n greet" with him yet.  We have similar likes and dislikes; he seems friendly enough.  But there's not this yearning inside me to hurry up and meet him in person.  However, this past weekend I was out with my girlfriend at our usual watering hole.  We were listening to the band, enjoying the people watching, & avoiding talking to the annoying man next to me who seemed to spray me with his spit every time he tried to talk to me and also reeked of weed. He did have a friend show up who was nice and friendly and mature and loved to dance and was married!  I saw the ring when we were dancing and I immediately backed him off and left the dance floor as soon as the song was over.  He tried to get me to dance with him a few more times and I just said no each time and looked at his wedding ring.  He got the hint.  But anyway that doesn't have anything to do with internet guy.  Back to that story.

On the dance floor I saw this guy who looked vaguely familiar.  I kept racking my brain, how did I know him, how did I know him?  He seemed goofy and had this grin that went on for days!  He came up to my girlfriend and I after I had sent the married man away and was trying to chat us up.  He never introduced himself or asked our names; it was all really awkward.  And I wasn't interested at all, in the least.

So the next day I was reading my dating site email and when I opened up Internet guy's profile, I did a double take... that was the smiling till the world ends dancing goofy guy from the night before.  Oh no, I thought to myself.  Ugh.

He emailed this morning asking how I am, how my weekend was, did I do anything fun.  I replied that I had spent time with girlfriends.  He asked where I went.  I haven't replied.  I think he'll figure it out.  I think he already knows that I was "the internet girl" at the bar. 

So far, the internet dating site has brought me four dates with men who are really gay but just haven't admitted it yet and one near miss.  So glad I didn't plan a meet n greet with Internet guy. 

Anyway, there's two examples of the dating "fun" I've been having.  One thing is certain, there'll be more.
Cheers!


Wednesday, February 5, 2014

T minus 23... alternate title "Dog gets to live one more day!"

It's cold and only going to get colder this week.  Kind of irritating because this is my "good week" and I was looking forward to being social.  But when temps are going to be 0 degrees F and below with 3-5 inches of snow on the ground, it makes it hard for anyone to go out and be social, much less me - the chemo patient!

And to add insult to injury, my dog chewed the thumb off my leather gloves!!! He already chewed up the leather on my great Strength bracelet that a friend gave me the other day.  So bummed about that!  I realize the dog is dealing with anxiety, Ladybug isn't here and my other dog is being fostered at a friend's until I'm done with chemo.  But seriously, leave my shit alone!

Yesterday's group support session was sobering as we had a new person join us and she is in palliative care.  This is where they don't try to treat the disease anymore; they just provide medications to ease the pain.  She was so sad.  Her eyes were profoundly hurting.  I didn't know what to say to her;  I wanted to make her smile or laugh but she didn't.  I left group with a heaviness in my heart because I don't know what I would do or how I would be if I were in her shoes.  I am so close to being done with my treatment (23 days!!) and I see my "life" resuming and cancer never coming back.  And I shed tears that mine was caught when it was; no one truly understands the magnitude of my gratitude.  But it's not for them to understand anyway.  It's mine.

Yesterday I talked about how this journey has taught me at least one thing:  to maximize my interactions with people (friends, family and strangers who will soon be friends) because you never know when you won't be able to do that anymore.  I'm not trying to be morbid here, just realistic, and so very contemplative.  A snow day will do that to you. 

I promise, dear readers, that I do have more funny stories to write about, so don't give up.  It won't always be about cancer, cancer, cancer.  And I'm looking forward to that as well!!!

Thanks for caring!
xx- The Philosopher

Monday, February 3, 2014

25 days left...

25 days until my final disconnect from chemo!  I am beyond excited!!! It's getting so close.  So close, soclose!

However, whoa!  These last two treatments have knocked me out for three days each.  All I want to do is sleep, drink water (room temp or warmer) and suck on Lifesavers Spear-O-Mint candies.  It's the only thing that makes the metal taste in my mouth go away, albeit, temporarily.  I brush my teeth several times a day as well because that gives me some relief too.  I also rinse with Biotene mouthwash as it seems to help with the cotton mouth I've developed these last two treatments.  My hair is still falling out.  And I've got the bags under my eyes again.  But I am not experiencing that debilitating jaw pain or the difficulty swallowing like I had before.  Yes, you should knock on wood on my behalf too.

I do miss getting my acupuncture immediately after being disconnected.  Since the shift in treatment days, I've got to wait until Monday mornings, almost 48 hours later, to get my acupuncture.  I know it works because until I get it done, my hands (fingertips especially) feel swollen and are painful to the touch because of the swelling.  But it goes away after getting treatment... I didn't use to have to deal with the swelling but must manage it for now.

Managing.  That's pretty much all I can do.  The cold weather isn't letting up (even with my offers of virgin sacrifices, mother nature is wielding a cold and fierce attitude this winter - who pissed her off this year and would you please say you are sorry, already!!!).  The groundhog can't catch a break either.
 
 
I am grateful that my chemo clock is winding down.  I know that makes a huge difference in my "chin-up" attitude.  It feels so much more do-able than it did on September 11, 2013. 
 
My oncologist said I will keep my port for another two years and will start receiving CT scans etc. pretty much within four weeks of finishing chemo.  He also said that he has been very aggressive with the chemo because he wants me to be cured of cancer and because I was young and healthy enough to handle/withstand/make it through all the side effects.   Thank god I was young and healthy enough because I can't imagine how it would have gone otherwise!
 
So until the five year mark passes without any recurrence of cancer, my body will be closely monitored.  And I will keep all of you informed too.  Thanks for reading!

Tuesday, January 14, 2014

Good days...

How should we like it were stars to burn
With a passion for us we could not return?
If equal affection cannot be,
Let the more loving one be me.
~Wystan Hugh Auden


Black and white, shades of grey.  Faded greens, red fires burning.  Deepest blue, steps into the soul.

A million lights of love fill us from the moment we are born until death.  Every act of love keeps a light burning, every smile, every laugh, every squeeze-kiss-hug.  Every hurt, instilled or received, snuffs one light.  How do you want your last days to be?  Full of light shining forth brightly overflowing with love?  Or void of that light, shuffling, muttering, scowling, the human vacuum, no peace till death?  I ask because no one knows when their time is up.  We are living our last days every day.

Thursday, November 21, 2013

MRI

Have an MRI scheduled for the morning - hoping to find the cause of my dizziness... praying that it will all be good news and they will say that you get dizzy because you are a "mad" writer! 

I'll update when I know.

UPDATED:  Brain is fine.  Genius status has been confirmed.  Very relieved.

My primary care doctor thinks that the dizziness is chemo-related because sometimes those drugs will affect the inner ear too....